Wednesday, May 14, 2008

Peanut

I decided to take a minute and add an update on Peanut. We have people asking us all the time about the status of his health and what is going on.

As of now, Peanut's kidneys are still stable. They function at 20%, and have since birth. He is actually doing better than the doctors expected. They predicted that around age 2 he would have a transplant, well, he is now almost 6 and hasn't had to have his transplant yet!

He still does not eat real food. He is fed through his G-tube three cans of a special milk made just for kidneys each day. He loves to eat chips and will actully chew them and swallow them most of the time. He also really loves vanilla ice cream, chocolate chips or candy bars, cereal, cheese crackers, fudge-stripe cookies, "Pepsi" (any pop is Pepsi), and water. That about sums up his diet! He doesn't eat anything that could sustain him, thus the feeding tube and the special formula.

He is on several daily medications, including a weekly injection that hurts like a bugger! The injection is the worst part of all we have to do because it is painful! He gets labs done each month and literally just sits there without having to be held while they poke his arm. He is really a tough kid!

He acts very normal and most people don't have a clue that he has anything wrong! He is smaller in stature and also a little delayed in the fine motor skills, language, and learning. He attended a developmental pre-school this past year and did really well. He is ready for Kindergarten this Fall, we will see if they are ready for him!

We just take it a day at a time with his kidneys. They could go at any time, and when they do, he will have to have a transplant. We just keep praying that it is not sooner than later and that his original kidneys will hold out as long as they possibly can! They don't put children on the list to recieve a kidney until they are at failure because kids get to go on the top of the list and they usually find a donor pretty quickly.

So, that is the update on P. and his condition. We feel blessed to have this challenge and not something harder. I know that Heavenly Father is aware of all that we have had to go through with this little guy and we have had many prayers answered on his behalf.

1 comment:

Angela said...

Oh bless his litte heart... He is so cute!